Wednesday, September 24, 2014

What Retired People Do!

Have you ever wondered what it is exactly that retired people do? We wondered that before we retired! Here are some pictures from a few weeks ago that show what some retired people get to do.
 
 
 
     Arland and I attended the MOCIC Conference in Deadwood, SD.  I had never gotten to attend the Fall MOCIC conference with him before because it was always in the middle of September...and if you're a first grade teacher, you know that a first grade teacher NEVER leaves the classroom for an entire week that soon into the school year!!! We visited Mount Rushmore and had a very fun-filled, relaxing week.



     During the day, there were tours available for the spouses. My friends, Faye, Deb, Peggy and I were doing some shopping after a wonderful lunch.


     What else do retired people do??? Arland and I have gotten to spend a few days at the lake. It was warm the day I took this picture of Arland fishing but quite cold the day he took the next picture. 



 


     We also took Kristi and the boys fishing. Here are the boys in action!

 
 Brody caught a nice sized sunfish! He was proud and quite impressed with his catch!


 

 
Logan caught an ugly bullhead! He was neither proud NOR impressed with his catch as you can tell from the look on his face!!!!!!!



     Tomorrow, I have several doctor appointments. I will get blood drawn and have another Herceptin infusion. I will also meet with my oncologist, Dr. Terstriep, for the last time during my chemo treatments. My next appointment with her will be in three months. My appointments will continue every three months for the first year.
 
     Then, at 1:00pm, my newest venture begins...my first radiation treatment. I will let you know more about that when I have experienced it. I was hoping I'd get another week to rest and build up my stamina but that was not to be I guess. The golden thread about starting radiation treatments tomorrow is that I will be done with my treatments that much sooner!!!
 
And that will be golden!



Wednesday, September 17, 2014

GREAT NEWS!!!!

     I had an awesome phone call this afternoon!!! 
 
Dr. Terstriep, my oncologist, called with some good news about my follow-up breast MRI that was done on Tuesday. There is NO more cancer in my breast...no residual cancer and no recurring cancer!!!!!!!!!!!! The chemo has done it's job!!!  I was delighted to hear that my breast is cancer free!!
 
     Now, as Paul Harvey used to say, for the rest of the story...
 
 Although the MRI detected no cancer in my breast, that doesn't mean that my lymph nodes are clear. Since I had one out of the five lymph nodes that they removed during surgery come back as positive for cancer, I need to have radiation to kill any cancer in the lymph nodes surrounding my breast.
 
     Radiation therapy is a targeted, effective way to destroy cancer cells that may still be around after surgery. Radiation can reduce the risk of breast cancer recurrence by about 70%.
 
Radiation therapy uses a special kind of high-energy beam to damage cancer cells. These high-energy beams, which are invisible to the human eye, damage a cell’s DNA which is the material that cells use to divide. Over time, the radiation damages cells that are in the path of its beam — normal cells as well as cancer cells. But radiation affects cancer cells more than normal cells. Cancer cells are very busy growing and multiplying. These two activities can be slowed or stopped by radiation damage. Because cancer cells are less organized than healthy cells, it's harder for them to repair the damage done by radiation. So cancer cells are more easily destroyed by radiation, while healthy, normal cells are better able to repair themselves and survive the treatment.
 
     Today I met with the Radiation Oncologist, Dr. Foster, and we got the radiation process started. He explained the radiation treatments and side effects. Two nurses also covered the process, side effects, and how to manage some of the side effects. After visiting with them, we began the Radiation Simulation.
 
     The Radiation Simulation started in the radiation room. I was directed to lie on a bed...no, let me rephrase that, lie on a hard table (no padding, just hard metal. Padding doesn't allow the machine to be as precise as it needs to be).
 
My right hand was placed over my head and I was instructed to hold on to a bar. My left hand was by my side, trying not to fall off of the narrow table I was on! I had to turn my head to the left and was told to try to remember how I was positioned because I needed to be in this exact position for every radiation, every time. I will have to be in this position for 20 minutes to 30 minutes every time I have radiation. It's not very comfortable but it's doable.
 
The nurses took pictures so that the techs who do the radiation have a reference for the real radiation days. Other pictures were sent to a radiation planning computer, which helps set up the treatment areas. Dr. Foster placed "stick-on wires" on the areas that needed radiation. Then they took measurements, lined up the linear accelerator (that's the machine that delivers the radiation), and did some other things. I had to lay VERY still during the measuring process because these marks need to be precisely in the right spot.
 
     The table/bed I was lying on moves and so I was slid into the machine part way so the Dr. and the nurses could see if all the measurements lined up with where I needed radiation. After that, they slid me out of the machine and marked three spots with a felt tipped marker. Those three marks need to be permanent because the marks tell the techs where to aim the radiation.
 
Sooooo, at the age of 62, I got my first, and let me add...my LAST, tattoos!!!!!! The reason I say my last tattoos is because it HURT!!! I must be a real wuss! 
 
The tattoo on my side didn't hurt much at all but the one on my stomach really hurt! The one on my chest hurt a bit but not as much as the one on my stomach. They use a needle to inject ink under the skin. The reading that I had done said the needle would be very small.  I would beg to differ!!! The tattoos are quite ugly...three little black dots!
 
     Dr. Foster and another doctor who is called a dosimetrist establish the size, shape, and number of the treatment fields. They design the treatment fields to maximize the dose of radiation to the area that needs to be treated and to avoid or minimize the dose to the normal surrounding tissues. Part of my lung, esophagus, and a couple other areas that do not have cancer will be getting radiation just because there is no way to avoid them being hit.
 
     I will have 33 radiation sessions. They will begin next week and will end mid-November. The radiation is every day, Monday through Friday.
 
     There is a sense of relief, of finally moving on after chemo, that makes me feel good about getting radiation started. I know the side effects will hit hard down the road but for now I'm focusing on moving past chemo.
 
Usually, my Golden Thread is something I am sure of.  Tonight, it will be something I believe will happen but can't be sure of yet. My Golden Thread is that I believe (and hope) that radiation won't be as challenging as chemo!!!

     My last thought for tonight is about beginning radiation treatments. It is:


 4bb4e0593b708bc0985ab1c346ff1280
 
That's how I'm viewing the 33 radiation treatments...fighting the battle again!
 

 

Wednesday, September 10, 2014

Ad Nauseam

     Just a quick update... 
    
     I am so thankful my last chemo was a week ago Thursday! I have had much more nausea this time around.  I have been laying VERY low this week because of the nausea. The inside of my mouth is peeling and is very sore. Toast, my food of choice during chemo, doesn't feel too comfortable for the next week or so. Hopefully, these issues will soon subside.
 
Food and water taste terrible so in seven to ten days, I'm hoping I will get to enjoy food and drinks again!  It's the little things that count a lot now...like good tasting food!  :-) 
 
     I have a Herceptin infusion tomorrow morning so after that I will get a bag of IV fluids. The fluids usually helps me feel a bit better.
 
     Next Wednesday, I see my Radiology Oncologist, Dr. Foster. We will begin planning for my six to eight weeks of radiation which may begin in October. And so, another new venture begins next week for me...
    

Thursday, September 4, 2014

My Last Chemo Is Done!!!

     It's over...well almost.
 
In the next few days as I recoup from this last chemo infusion, I will be celebrating the close of this chapter in this unplanned journey. I am ready to move on! Here are some pictures from today...
 

 
This sign says it all!
 
Katie made the sign for me to show our delight at having reached this point.

 
 
My countdown has come to an end! I am down to one chemo treatment left.
 
 
 
One of my "firsties" from last year has a mom who works at the infusion center where I get my chemo and Herceptin treatments.  She asked her mom to deliver these balloons to me to celebrate my last treatment. Wasn't that just the sweetest gesture?  I love that little girl!!!

 
Arland was there for moral support. His "thumbs up" shows that he is ready for chemo to be over too!


 
 Katie has been with me for ALL SIX chemos!  She is my faithful companion, staying the WHOLE ENTIRE TIME that I am there!!!  I so very much appreciate her devotion to being with me through this journey. Kristi was there for part of the day too. Unfortunately, she was always on the other side of the camera! Bob has a really bad cold and didn't come so that I could avoid catching it!
 
 
 For all four pre-chemo medications and for every bag of chemo I get, they scan my hospital wrist band and have me tell them my last name and birthdate. This helps them be sure I am getting the right medications.
 
 Tammy, my nurse today, was very sweet and lots of fun! She is hanging Carboplatin, the last chemo I got today.
 
 This is my LAST BAG of chemo chemicals for hopefully FOREVER!!!
I have been getting chemo for the last five months.
 
 
This has been my goal for the last five months...to ring the bell!!!
 
Ringing the bell signifies finishing the last chemo treatment! It may seem silly to some, but it is part of the tradition at the RMCC. This tradition wraps up this part of my cancer treatment.

Relief, delight, joy, excitement, pleasure, happiness, satisfaction and gratefulness are only a few of the emotions I felt as I rang that silver bell!
 

Several friends surprised me by showing up for my bell ringing. I very much appreciated their presence and their support!


Ring, ring, ring the bell,
Ring it loud and clear,
To show the people gathered near
That the last chemo is here!
 
Arland brought me TWO dozen red roses! He's so sweet! Dianne L. brought a vase of gorgeous, home-grown gladiolas from her garden. It was so sweet of her to share her flowers with me. They are beautiful! Gladiolas signify strength.
 
        I received lots of hugs and well wishes!



 



         This is our "entourage" as we left the RMCC after my last  chemo treatment. Kristi was again on the other side of the camera.




                                      

   And now, life goes on...




Wednesday, September 3, 2014

It's A Go!!!

 
     It's a go!!!!!!!!!! 
 
I get to have my last chemo tomorrow, Sept. 4th! I cannot wait to close this chapter of my life!
 
     My blood test went very well today. My platelet count needed to be over 100.  It is 148!!!!!!!!  I was confident it would be over 100 because I haven't felt this good for a long time.  I felt so good on Labor Day that I washed windows at the lake. The extra week between chemo treatments helps me feel "almost normal."
 
     The other reason I knew my count would be up is because my legs ached every single day last week.  My bone marrow was working soooo hard to make platelets so that's why I had such achy legs. I'm sure the prenatal vitamins and the B12 supplement played an important part too.
 
     But he most important reason my count was over 100 is all the extra prayers that have been offered up during these last 10 days. I believe they made all the difference!
 
     So tomorrow, Thursday, Sept. 4th, is D Day (DONE Day). My chemo begins at 7:30am. Bell ringing to signify the end of my FINAL chemo treatment will be sometime around 1:30pm at the Roger Maris Cancer Center.  Keep your ears "pealed" for loud ringing sounds followed by shouts of joy coming from the RMCC around that time!!!